FD/MAS Alliance
Research. Educate. Advocate.
Partnering for Progress: Support the FD/MAS Alliance
The FD/MAS Alliance (incorporated as the Fibrous Dysplasia Foundation, Inc.) is the only nonprofit organization in the U.S. solely dedicated to improving the lives of those affected by fibrous dysplasia and McCune-Albright syndrome (FD/MAS)—rare, often debilitating disorders that affect the bones, skin, and hormone-producing tissues.
Why Your Support Matters
Since 2004, the Alliance has been at the forefront of work that changes lives. We're not just a resource—we're a lifeline for over 4,000 patients and families worldwide. Through accessible online education, virtual programming, and well-established advisory boards, we connect patients with leading medical experts, trusted information, and urgently needed emotional support.
But our impact goes beyond the community—we are also driving meaningful change in scientific discovery and medical advancement.
Driving Research Forward
The FD/MAS Alliance plays a pivotal role in advancing research through our active participation in the University of Pennsylvania Orphan Disease Center’s Million Dollar Bike Ride (MDBR). This annual event directly fuels critical early-stage research through pilot grants—projects that often lay the groundwork for larger breakthroughs.
Since 2014, Team FD/MAS has contributed over $1.2 million, funding 22 pilot research projects.
In 2023, we raised $161,620, enabling the launch of three new studies in 2024.
In June 2024, we secured over $120,000, positioning us to fund two new projects in 2025.
The ripple effect is real—MDBR-funded investigators received over $6.5 million in federal grants in 2023 alone, a testament to the long-term impact our efforts (and donor support) make possible.
Your Chance to Make a Difference
As a donor, you make all of this possible. FD/MAS remains underrecognized and underfunded—and every dollar you give drives forward research, education, and hope for families facing this lifelong disorder.
Together, we can continue to change the story for those living with FD/MAS. Invest in a future driven by knowledge, compassion, and cures.
Category: Health
Cause: Diseases, Disorders, and Disciplines
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Disclosures:
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